The journey we take when we partner with a loved one with Alzheimer’s disease is turbulent to say the least. Our husband, sister, or mother needs everything we can possibly give them. They don’t realize it, and may resent or shun our help, but they can do little without assistance.
The statistics aren’t pretty. More than 30% of the primary family caregivers of people with Alzheimer’s die before the loved one they care for. In this position we are taxed at an extraordinary level. The disease zaps us emotionally, physically, and financially because of the 24/7, day-after-day, often for decades, all-consuming demands and the sheer agony of watching our relationship fade away.
I know this path well. My husband Marshall has had Alzheimer’s disease at least eleven years. He now resides in an assisted living home specializing in memory care, and although I no longer have the full-time responsibility of his every need, there continues to be much I must do for him. At this point, I feel blessed that our love for each other remains strong, but I know full-well that soon can be taken away from me too.
My latest book, Navigating Alzheimer’s. 12 Truths about Caring for Your Loved One, is jam-packed with solid information and observations I learned along the way. It covers issues raised by many people who have approached me seeking answers for their own caregiving needs. Topics include the early signs of Alzheimer’s; important behavior for caregivers; the perpetual mourning we experience; expected costs of caregiving; dealing with insensitive remarks from outsiders; guidelines for selecting appropriate caregivers and assisted living homes; and the importance of appreciating the gifts we do have.
Navigating Alzheimer’s certainly isn’t a fun read but offers an important resource and compassionate camaraderie for families dealing with loved ones with Alzheimer’s.
Click here to listen to an interview about this book with Dean Richards on WGN Radio.
©2015, Mary K. Doyle